test Comments for your JibberBook 5 Thank you for your encouragement! My wife suffers from Lupus and still takes care of our seven kids. She works extra hard to take care of herself despite her RA and flare ups. I found your website when she wondered if anyone even did any fundraising for Lupus. It is great to see this kind of awareness as it is so important to educate people everywhere and make sure Lupus sufferers are taken care of and treatment funded. I cycle as well, but 400 plus miles in 24 Hrs would be quite the challenge. Your challenge and accomplishment was a definite win in their battle. Thank you!!! Sincerely, Paul. Sat, 24 Oct 2009 21:59:37 -0700 Hi! I wanted to pass along a new Lupus resource. It is through a website www.lupus.physiciansforpatients.com It is a community of lupus folks that interact online to give one another support. There is a dedicated physician on the site to answer questions for the patients. We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to people that need alternative opinions and information. There are a lot of people that have limited access to health care (can’t find a specialist in their area, long wait times, etc.). This way it is easier for a smaller number of physicians to help a larger number of people. Dr. Shanahan is the doctor. He is board certified in Rheumatology and trained at Duke University In addition, we will be incorporating 'health trackers' soon! This tool can be used by the patients to track their symptoms and to see what may be contributing to them. Physicians for Patients will also be looking for associations (trends in complex data sets of the cumulative data collected in this large community of patients. This is done in an automated anonymous manner). This is the exciting part! Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand Lupus and hopefully to guide us to new potential treatments. I am also hoping that you like the site and help us to spread the word about what we are trying to do (any group messages that can be sent/ links/ blogs are much appreciated. Could you include us in your newletter?) In order for us to make some new head way into better understanding lupus through identifying new correlations we need quite a large people to participate. I really enjoyed your video. Feel free to post it on the site and to tell our members about your organization. Best regards, Art Art Kaminski MD President, Physicians for Patients Mon, 19 Oct 2009 08:01:13 -0700 Great job, I have lupus and scleroderma but enjoy the sport of cycling. Thanks, acts like this mean alot. Thu, 23 Jul 2009 19:13:27 -0700 I am deeply touched by your story. Thank you so much for raising awareness. I live with Fibromyalgia, but my friend's mother lives with Lupus and my other friend had a family member die of Lupus. Thank you again, Cheers! Tue, 07 Jul 2009 14:50:15 -0700 Thank you so much for sharing your story and for raising awareness and money. It's so important that you are giving a voice and face to this disease and teaching people. It is so admirable and I cheer you on in your fight/quest. Tue, 07 Jul 2009 05:00:50 -0700 As a Canadian woman with Lupus I support your ride, I too do as much as I can to raise money and awareness to find a cure for Lupus!!! Keep on riding..... Fri, 01 May 2009 09:08:13 -0700 Such an awe inspiring story - one that youve added a joyful chapter to. So happy for you and all those who helped you in your quest. Congratulations! Wed, 29 Apr 2009 09:06:17 -0700 Join the party at http://www.VirtualCelebration.com. Watch video, view photos from the 24hrs at the track, and connect with other supporters. Just search register and search "Chris Paradysz" to get started! Wed, 29 Apr 2009 09:00:18 -0700 WOW!! What a fantastic accomplishment. Congratulations! Mon, 27 Apr 2009 20:03:15 -0700 Chris. Awesome performance and a great tribute to your dedication and stamina. Congratulations! Mon, 27 Apr 2009 15:55:19 -0700