Cheers
Art Kaminski writes...
Hi!
I wanted to pass along a new Lupus resource.
It is through a website www.lupus.physiciansforpatients.com
It is a community of lupus folks that interact online to give one another support.
There is a dedicated physician on the site to answer questions for the patients.
We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to people that need alternative opinions and information. There are a lot of people that have limited access to health care (can’t find a specialist in their area, long wait times, etc.). This way it is easier for a smaller number of physicians to help a larger number of people.
Dr. Shanahan is the doctor. He is board certified in Rheumatology and trained at Duke University
In addition, we will be incorporating 'health trackers' soon! This tool can be used by the patients to track their symptoms and to see what may be contributing to them.
Physicians for Patients will also be looking for associations (trends in complex data sets of the cumulative data collected in this large community of patients. This is done in an automated anonymous manner). This is the exciting part! Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand Lupus and hopefully to guide us to new potential treatments.
I am also hoping that you like the site and help us to spread the word about what we are trying to do (any group messages that can be sent/ links/ blogs are much appreciated. Could you include us in your newletter?) In order for us to make some new head way into better understanding lupus through identifying new correlations we need quite a large people to participate.
I really enjoyed your video. Feel free to post it on the site and to tell our members about your organization.
Best regards,
Art
Art Kaminski MD
President, Physicians for Patients
I wanted to pass along a new Lupus resource.
It is through a website www.lupus.physiciansforpatients.com
It is a community of lupus folks that interact online to give one another support.
There is a dedicated physician on the site to answer questions for the patients.
We originated as a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a free resource to people that need alternative opinions and information. There are a lot of people that have limited access to health care (can’t find a specialist in their area, long wait times, etc.). This way it is easier for a smaller number of physicians to help a larger number of people.
Dr. Shanahan is the doctor. He is board certified in Rheumatology and trained at Duke University
In addition, we will be incorporating 'health trackers' soon! This tool can be used by the patients to track their symptoms and to see what may be contributing to them.
Physicians for Patients will also be looking for associations (trends in complex data sets of the cumulative data collected in this large community of patients. This is done in an automated anonymous manner). This is the exciting part! Our hope is to identify correlations between symptoms, daily activities, medications, and the environment. This will help us to better understand Lupus and hopefully to guide us to new potential treatments.
I am also hoping that you like the site and help us to spread the word about what we are trying to do (any group messages that can be sent/ links/ blogs are much appreciated. Could you include us in your newletter?) In order for us to make some new head way into better understanding lupus through identifying new correlations we need quite a large people to participate.
I really enjoyed your video. Feel free to post it on the site and to tell our members about your organization.
Best regards,
Art
Art Kaminski MD
President, Physicians for Patients
Posted on October 19, 2009 - 08:01:13
Shawn writes...
Great job, I have lupus and scleroderma but enjoy the sport of cycling. Thanks, acts like this mean alot.
Posted on July 23, 2009 - 19:13:27
Teia Hassey writes...
I am deeply touched by your story. Thank you so much for raising awareness. I live with Fibromyalgia, but my friend's mother lives with Lupus and my other friend had a family member die of Lupus.
Thank you again,
Cheers!
Thank you again,
Cheers!
Posted on July 7, 2009 - 14:50:15
Caroline writes...
Thank you so much for sharing your story and for raising awareness and money. It's so important that you are giving a voice and face to this disease and teaching people. It is so admirable and I cheer you on in your fight/quest.
Posted on July 7, 2009 - 05:00:50
Judy Nagus writes...
As a Canadian woman with Lupus I support your ride, I too do as much as I can to raise money and awareness to find a cure for Lupus!!! Keep on riding.....
Posted on May 1, 2009 - 09:08:13
Laurette Kovary writes...
Such an awe inspiring story - one that youve added a joyful chapter to. So happy for you and all those who helped you in your quest. Congratulations!
Posted on April 29, 2009 - 09:06:17
S.L.E. Lupus Foundation writes...
Join the party at http://www.VirtualCelebration.com. Watch video, view photos from the 24hrs at the track, and connect with other supporters. Just search register and search "Chris Paradysz" to get started!
Posted on April 29, 2009 - 09:00:18
Teddy's Family (Cubs) writes...
WOW!! What a fantastic accomplishment. Congratulations!
Posted on April 27, 2009 - 20:03:15
Betsey & Arty Selkowitz writes...
Chris. Awesome performance and a great tribute to your dedication and stamina. Congratulations!
Posted on April 27, 2009 - 15:55:19
Deana Ashbaugh writes...
Chris, you are amazing!
Posted on April 27, 2009 - 13:45:17
terri evans writes...
How very cool! As a lupus patient, I say, "thank you so very much." As a parent (who still fears her daughter may someday face lupus), I say, "what an incredible, unforgettable, undeniable gift of love and hope to give your daughter!"
Posted on April 27, 2009 - 13:30:58
Bryn Scott writes...
You are always able to move mountains. Congratulations Chris. Amazing!
Posted on April 27, 2009 - 12:18:11
Mel writes...
Chris, you are the vessel of inspiration, hope and CHANGE. You met your outrageous promise and began a new perspective and grasp on what is possible. Anything!
Posted on April 27, 2009 - 10:24:18
A Norma & U Myron writes...
Congratulations. You did it! We're so very proud of you. Now we can breathe a lot easier too. Tons of love, from us to you.
Posted on April 27, 2009 - 07:43:55
Angela writes...
Not angels. LOL!
Posted on April 26, 2009 - 19:57:12
Angels writes...
There was never a doubt that you would break the record. I knew there was no way it was not going to happen. You did it with hard work, determination, motivation and for love. There was nothing selfish about your motives. Some say a champion is a winner, but a true champion is one who does, and does it with passion, grace, love and above all with the desire not to be the best, but to do one's best! You have always been a champion and today more people know what I always have known! Special thank you to andy and Lindsay!
Posted on April 26, 2009 - 19:56:32
Nancy Small writes...
Congratulations Chris! It was so great to see you out there doing what you could do to contribute to eliminating Lupus for good. I am so proud to be your friend. You have tremendous courage and determination. Amazing job, as always! Can't wait to hear your pov on the whole experience!
Posted on April 26, 2009 - 19:33:41
Lisa and Robert Lourier writes...
Congratulations Chris and family. Your family and your accomplishments are truly inspirational! Well done.
Posted on April 26, 2009 - 17:13:12
Sallie Urffer writes...
It was an awesome accomplishment and I'm proud I could be a small part of it, by keeping time and laps for 12hrs. CONGRATS from a SoLeHi Alum!
Posted on April 26, 2009 - 10:16:59
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My wife suffers from Lupus and still takes care of our seven kids. She works extra hard to take care of herself despite her RA and flare ups. I found your website when she wondered if anyone even did any fundraising for Lupus. It is great to see this kind of awareness as it is so important to educate people everywhere and make sure Lupus sufferers are taken care of and treatment funded. I cycle as well, but 400 plus miles in 24 Hrs would be quite the challenge. Your challenge and accomplishment was a definite win in their battle.
Thank you!!!
Sincerely,
Paul.